Summer Greetings

This post is being sent via my IPad 2. It's so much easier for me to type on the smaller keyboard with one hand. As far as my MS, I am still in a holding pattern awaiting fmy August 11th appointment with my neurologist. The last time I was switching medications, going from Tysabri to Gilenya, I was having an especially hard exacerbation which affected both my physical and mental states. It was the pits, a real low point for ne. I am to have another MRI prior to seeing him. I am very anxious to see if any changes have occurred since my last one whIch was done last December. Also, I am anxiously looking forward to getting back to Tysabri, which was working very well for me in the past. Knowing my body better than anyone else, I am certain that some changes have occurred. My right arm is even more useless than it ever was. In addition, my memory functions have become worse, but I am still hanging in there. The Segway has once again become more important to me. In fact I just returned from riding it to church. The weather here is somewhat cooler this morning and it is one of those days where all is right with the world and I just wanted to experience the sights, sounds and smells from the Segway platform while whizzing along at top speed (listed as 12.5 MPH. I might even take a 'fun run' this afternoon.
I am still amazed at people wanting to talk to me about the device, even after it has been out for app. 10 years. While in the Apple store at the mall with my grandson, I met the nicest lady who wanted to talk to me about the Segway. The next day she sent me a wonderful Email. Things like that tend to inspire me very much and give me added strength to handle my problems. Much thanks to her and others who have been so encouraging

Where the H*&^ Have I Been?

Even though it's been a while since I've posted I'm still here and kicking. Seriously though, quite a lot has happened since the last post. We have slowed down on our travels for a couple of reasons, the first being that we are getting a little bit older and neither of us has the energy we had a few years ago, the second reason has to do with the higher gas prices. Another reason is that I (along with my Dr.) are trying to halt the progression of my MS - one thing that anyone with MS can tell you is that MS is a highly individualistic disease with no two cases being alike, sometimes acting like totally different diseases.

I, and my Dr. Have decided that after six months on Gilenya, things are getting worse, so we're going back to Tysabri. Bring it on! That also means that I get to be with my Tysabri buddies again. Honestly I have missed them. Also I have entered a study, which is funded by Biogen, to determine if a gene which has to do with PML, (deadly brain disease) is in my system. All I really have to do is let them take some blood just once a year in order to see if there are any changes.

We haven't exactly been staying at home and have been out on short jaunts a few times which I will post about soon. Also, new grandson number four, who lives app. 175 miles away has definitely cut into our travel time. One more activity which demands a good sized portion of my time, is that I've taken on the task of redesigning and maintaining our church website. Undeniably a fun task for me.

The Segway continues to be extremely important to me, and is still just as much fun to have as it was when I first had it. A little while ago I went on a two hour fun and performed a couple of errands while touring the town.

I'll stop for now even though I'm having fun typing on my new IPad.