Pre-Christmas Happenings

Well, I am in a holding pattern awaiting word from my neurologist concerning beginning the new medicine regime (Gilenya). I successfully jumped through all of the hoops required by Novartis and had an appointment with Dr. Blake Tuesday. I thought we were going to start the medication this weekend. But a few other things got in the way, one being that the medication has not been distributed yet to the Dr.s' office with the second being insurance approval. Dr. Blakes' office staff is working on both, even trying to hustle up some more samples (they have a two week supply) so that I can get at least a month head start while the very new drug is being distributed.

I don't like being in a holding pattern even one little bit. I feel like an uneasy tightrope walker who is beginning the trek across the high wire without a safety net underneath. I've done about all I can do at this point (that is, until I can think of something else) by making several calls to my insurance provider, Dr.'s office, even threatening to drive to the drug company myself in an effort to obtain sufficient medication for my needs. I can be a real pest when I want to be. I do believe that Dr. Blakes' staff is doing everything they can to help the situation. Just maybe, I'll have an early Christmas present. We'll see!

On a Cold December Day

As my dad used to say 'You look as contented as a hog on ice'. My two four legged friends are sitting with me as I read a selection from my Kindle. On the back of the chair is Annie and sitting beside me is Otis. Both are (non-shedding) Schnoodles.

As far as my MS, I'm still in a holding pattern waiting for the Tysabri to get completely out of my system and December 14, the day I meet with Dr. Blake in order to go over the results of my five exams and set a time for beginning with Gilenya. When I do have 'ups or downs' I miss the Tysabri infusions a lot. I know mid-December will come soon enough, but I feel like a child who is anxiously looking forward to Christmas.

As far as Segway news goes, I still get reminded of the owner of the Segway company riding his personnel machine off a cliff in England and falling to his death. I am very nice when I reply back by saying that 'I don't ride mine off cliffs'.

Secondly, I have nothing but bad things to say about slow Segway service. I took my main machine to the dealer in Cincinnati because it was quitting on me (it did give me the programmed warnings that it was about to stop, so no mishaps). I left it there before the first of June and didn't get it back until just a few weeks ago . It was sent off to the Segway plant where one of the main boards was replaced. Thank goodness I had a working backup.