Monday, March 05, 2012

Lab Rat Happenings

I have been slower to post now than I used to. Rack it up to my old age. No, Seriously, I have been working on our church website. I took it over a little over a year ago and kept adding to it, so that now it can take quite a bit of time depending on what is taking place. I am beginning to learn to manage my time better, so I can return to posting more often. My lab rat experience is now in the third week. I have had two meetings with the doctors, obtained my medication which I am now taking. I have been placed in one of four groups, three of which take a different dosage of the medication, while the fourth group takes a placebo. It is a double blind study in that no one, even the doctors do not know who is getting what. I have been given a small electronic diary which I fill out four times a day, answering questions ranging from both the quality and total hours of sleep along with my perception of the degree of spasticity (the subject of the study). Info is uploaded daily to the group controlling the study. Thus far I have had two appointments which lasted between one and two hours. This week, I am scheduled for an eight hour session, most of which will be spent sitting around after taking a dose. I will occupy my time reading or using my Ipad (might even play a game or two-or three) I have wondered many times which level of medication I am taking. Depending on how I feel at the time, my thoughts range anywhere from taking the placebo to being given the highest dose. In addition, I have begun to follow many of the ideas put forth in the Dr. Terry Walls book, 'Minding My Mitochondria, not the easiest thing I've ever done, but I have adopted a strict diet of no gluten, no sugar, no dairy, grass fed beef and pork, and free range chicken. I have been a fan of Montel Williams for a long time and now the direction of his approach to handling his MS has taken a very strong nutritional turn. I will also try to keep my posts updated to include this area. Even though it's been a warm winter thus far, my Segway riding has slowed . Although I am beginninng to rely on it more as a mobility aid as the advancing degree my MS slowly marches on. A lot here, but there is a lot to tell. Will keep plugging on. Thought for the day: 'Everything will be better in the end, so if things aren't better, then it's not the end'- Anonymous